PrEP: Why aren’t you on it?


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Josh Kilby, activist and healthcare worker
Josh Kilby, activist and healthcare worker

I’m a healthcare worker, Queer activist, and consider myself to be pretty well-informed and connected and yet if you had asked me about PrEP as recently as September, I would have wondered what you are talking about. I’m up here today because I feel that the word PrEP needs to be on the lips of every sexually active person and the people they love.

PrEP which stands for Pre-Exposure Prophylaxis is a once a day dose of an anti-retrovirus drug called, Truvada; which is also used for people who are HIV Positive to help keep viral loads low, but in people who are negative, if exposed to HIV, kills the virus before it has the chance to infect you. Numerous studies have shown it to be pretty darn effective.

Being newly single, and sexually active, this naturally piqued my interest; if a one a day pill can help prevent an unwanted condition, why wouldn’t I be on it?

But for good measure, I took to social media to see if anyone in my extended networks had any thoughts or experiences with it. The results were somewhat unsurprising, but worth breaking down:

Two people reached out to me privately to tell me their stories, which were well-received and appreciated, but I wondered why they didn’t feel safe to say publically they were PrEP users. Until I saw some of the other public responses (most of which were positive), but there were a strong current of people who were telling me that I weren’t being “sleazy” I wouldn’t have to worry about this or that they felt that this pill will encourage “bad” behavior.

Kilby and Dr. Amy Nunn
Kilby and Dr. Amy Nunn

This line of thought is nothing new…54 years after the Birth-control Pill hit the market and 41 years after safe and legal abortion was won, people are still saying that contraception will encourage “bad” behavior.

Well I’ve got news for them. “Bad” behavior does not need encouragement. At all. And furthermore, there is nothing bad, dirty, or shameful about sex. We owe it to ourselves, our partners, and the people we love to first and foremost, enjoy ourselves, but also to do everything we can to protect ourselves and other.

We as a society need to come to grips with the fact that sex-positive and queer-inclusive sex education not being a part of our public school curriculum is nothing short of a public health crisis; creating a layer of young people with lots of misinformation and questions who are afraid to seek out answers for fear of judgment. This is dangerous. Silence, in this case, literally equals death.

I, along with my Doctor, Dr, Chan, did decide that going on PrEP was the right decision for the type of life I lead. I was very fortunate to thus far not experience and of the side effects (nausea, vomiting etc.). And if you’re wondering, it didn’t encourage and more or less “bad” behavior.

To conclude, I would be remiss if I didn’t discuss how equally important access to this drug is to it’s availability. I am lucky in that I have a good job with good health insurance, so access to PrEP was no issue for me. But there are so many people in vulnerable demographics (I think of sex-workers and IV drug users especially) may not be as lucky and cannot afford to pay the over $1500 out-of-pocket cost of a monthly supply of Truvada. PrEP has the potential to make new HIV infections a thing of the past, but it cannot do that if no one’s heard of it and people who need it the most cannot access it.

These are the facts, but our challenge as healthcare providers, law-makers, activists, and people who want to see a world without HIV/AIDS is to overcome them. We have come so far already; research in tandem with activism has taken HIV for a death sentence to a chronic, but mostly manageable condition, and now we have the capability to prevent it in the first place. We need to be screaming about this from rooftops, flyering every gay bar, I also liked Dr. Nunn’s idea about using sites like grindr and scruff as tools for outreach, and also making the phrase “ask your doctor about PrEP” as recognizable a slogan as “get tested” and “know your status” is now!

Flow my tears, the fireman said


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DSC_7991I don’t know the firefighter who stood in the window, fist raised in solidarity with the protesters rallying outside the Providence Public Safety Complex a week ago. I don’t think anyone could tell who the figure was or what occupation the person might be employed in. All I could see was a silhouette, a literal shadow of humanity, demonstrating commonality with the protesters as a human being with emotions, thoughts and concerns.

What could I know about the figure in the window? I couldn’t be sure of the figure’s race or ethnicity. Medium build. Average height. Might be a man but in truth, until Commissioner Paré used identifying pronouns, I couldn’t be one hundred percent sure of gender.

DSC_7993All I could see was a human being, making contact, sharing the same pain and concern as those assembled below. I could have made up a thousand stories about the figure in the window, guessing at his or her reason for choosing to raise a fist in solidarity, but somehow, I never doubted the intentions of the act. Somehow the simple gesture of raising a fist in shadow communicated both solidarity and sincerity.

It was a meaningful, touching gesture.

Even those who believe that the firefighter’s actions were completely unwarranted and somehow a betrayal of his duty do not doubt the sincerity of the action. This was obviously not an act of mockery but an act of solidarity, and this came through even though the figure was only a silhouette, a shadow in the window, visually more symbol than human. The humanity of the act was palpable, almost psychic.

DSC_8001Commissioner Paré recognized the humanity of the action immediately. It was the sincerity of the gesture and the humanity expressed that made a silhouette with raised fist so dangerous. For the system to work, one side must be strong, powerful and monolithic and the other side must be weak, compliant and diverse. When the strong show tenderness and tolerance or the weak demonstrate strength and solidarity, the system strains to breaking, and punishments must be meted out.

I feel sad that my footage has caused the firefighter censure and official punishment. Commissioner Paré says the firefighter should have remained neutral, but were the disdainful looks or dismissive chuckles of other figures in the windows neutral? Dismissive attitudes also lack neutrality, yet it never occurred to me or the protesters to note such attitudes, because they are common. It seems neutrality is only neutral when it serves those in power.

DSC_7296If in the future I film police officers at protests laughing or taking a dismissive attitude towards the activists, will Commissioner Paré take them to task for their lack of neutrality? Perhaps the police should wear helmets to hide their emotions and mask their humanity. No one can see the tears of a stormtrooper as the trigger is squeezed.

Neutrality über alles.



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Condition of PVD schools: ‘a kind of slow, horrible violence’


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Gilbert Stuart Middle School
Gilbert Stuart Middle School. Click on the picture for more photos.

I recently wrote a short op-ed for Providence Journal about the state of Gilbert Stuart Middle School demanding action be taken with regard to the physical state of our local schools.

A recent RI Future article published pictures from inside of this school, which show – even if only in part – how poor the conditions of the physical school buildings actually are in urban Rhode Island.

Having been inside this school in particular, I’d say these are just an additional glimpse at the many physical problems the school has.

Beyond the asbestos curtain, peeling paint, and falling roof tiles, I find myself concerned about the prospect of the leaky roof and the resultant mold, as well as the state of the school’s potable – or perhaps non-potable – water.

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Gilbert Stuart Middle School in Providence. Click on the image for more pictures.

The photos do provide a much more accurate depiction than Linda Borg’s Aug. 23 article for Providence Journal (“Superintendents say deferred maintenance in Rhode Island schools is driving up costs”) I wrote the critical op-ed in response to an article that seemed more like acquiescing political coverage and a public relations stunt than an honest consideration of how bad the schools are. These are public buildings occupied by students and teachers and they are being left to rot because of poor budgetary management.

ridechart_gilbertstuartThe RI Future article also was beneficial for pointing out the school’s score on the 2013 RIDE report, where Gilbert Stuart received 2 out of 5, on a scale where 5 is the lowest score (2 being considered “generally good condition, some system needs. Minor renovations.”).

Looking at the photos, and having actually been inside of the building itself, makes me question the report itself, and how honest it is being about the living conditions inside of schools. I tend to think leaking roofs, likely mold, and an asbestos curtain puts the school in a category that’s much worse than just being in need of “minor renovations.” One wonders if the people grading the schools have looked at so many bad schools, so many schools so much worse than Gilbert Stuart, that their sense of what is acceptable has become clouded.

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Click for more pictures.

What struck me the most about the report, is that the average condition of schools in urban and rural locations is worse than the condition of Gilbert Stuart according to the organization’s grading scale. Urban schools received an average condition rating of 2.25, and rural schools received an average rating of 2.19. Suburban schools were only slightly better on average than Gilbert Stuart, receiving an average rating of 1.85. In other words, Rhode Island has many schools in just as bad, if not substantially worse, condition than Gilbert Stuart.

It is also worth noting that these schools are worth a lot of money (the report values Gilbert Stuart at $18,466,300) and they’re being left unrepaired in ways that are detrimental to the buildings themselves. But that feels besides the point, as these are public buildings being occupied by people, and I tend to think that moldy buildings with asbestos in them are detrimental to the people occupying them.

There is a kind of slow, horrible violence being done against the students and teachers expected to occupy these buildings. This is not just some minor budgetary hiccup: something drastic needs to be done about the condition of these schools for the sake of the children and teachers who spend their days inside the schools.

Online hookup sites key to combatting AIDS in Rhode Island


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Dr. Amy Nunn
Dr. Amy Nunn

Too many of us think of AIDS as something that occurred in the past, and see it as a manageable, if unfortunate disease that is well on its way to being eradicated.

The truth is that as of 2012, over 1591 Rhode Islanders has died because of this epidemic. Though the rate of new infections has decreased over the last 30 years, there were 74 new cases of AIDS in RI in 2013. This is an increase of over 17%, according to Dr. Amy Nunn of Brown University who spoke at the State House yesterday for World AIDS Day. She was joined by Governor Linc Chafee and US Rep. David Cicilline and many public health advocates.

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“Today, over half of the new infections are among men, in Rhode Island, and we know from Dr. Philip Chan’s study that a lot of these people are meeting on line, on the Internet,” says Dr. Nunn, “The problem is that our preventative response hasn’t been as quick as those websites which are making money hand over fist and helping people hook up online.”

Dr. Nunn would like to avoid stigmatizing high risk lifestyles and instead concentrate on education as a means of protection.

The answer is “to get our preventive response aligned with how people are getting infected.” Dr. Nunn sees the answer as partnering with these online hook up sites like Grindr, “I would posit that they do a much better job of reaching the highest risk people than we have done in the public health community, and it’s time for a revolution.”

“I would like to challenge every one in the room that we really need to think about how we can enhance our prevention strategies by working with these companies online and also shaming them into corporate social responsibility. Why aren’t they doing more?”

Dr. Nunn would also like to implement AIDS screening as part of our regular checkups, as routine as blood pressure and temperature checks.

If we do this, says Dr. Nunn, we have a good chance of getting our AIDS infection rates down to zero.



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59 years later, Rosa Parks’ fight isn’t over


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DSC_7755Civil rights activists spoke yesterday in South Providence as part of the seventh annual Rosa Parks Civil Rights Day Commemorative. The speakers drew parallels to Rosa Parks’ brave action of 59 years ago when she was arrested for refusing to give up her bus seat to a white passenger in Montgomery and the rising protests against racial profiling and the militarization of the police today, highlighted by events in Ferguson.

The speakers highlighted some of the differences in tactics among the various activists and groups, but all agreed that the activism of Rosa Parks and the election of Barrack Obama as president was not the end of the fight against systemic racism in America. There’s still a lot of work to be done.

Malcus Mills is a prominent member of DARE, as well as a member of the Rosa Parks Human Rights Committee and the Peoples Assembly.

“If you look back through history, change has never happened quickly, and never without those who have lost their lives…”

Joe Buchanan is a member of the Rosa Parks Human Rights Committee.

“In 1955 I was three years old when Rosa Parks, this working Black woman got on the bus. She is one of the many great Black women through history…”

Providence City Councillor elect for Ward 11, Mary Kay Harris, is also a member of the Rosa Parks Human Rights Committee.

“It’s very important that we continue to look at human rights, the rights of people, the right for a movement, the right of people to have a voice…”

Native American Ray Two-Hawks Watson gave a fiery speech in defense of last Tuesday night’s Ferguson protesters who blocked the highway here in Providence.

“…everybody was up in arms about it. Oh, it was dangerous and this, that and the other, but to that I say it’s dangerous being a youth these days. Because not only do you have to worry about gangs, not only do you have to worry about drug dealers and all that but you also have to worry about police officers who should be protecting you from those elements treating you like you’re one of them.”

Sheila Wilhelm, of Direct Action for Rights and Equality (DARE) was unapologetic in her defense of the protesters.

“Dr. King said, ‘Riots are the voices of the unheard,” and it’s a shame sometimes what we have to do to get our voices heard, but also, ‘by any means necessary.’ Especially, especially when we’re fighting for our children… Personally, when I saw the actions of last week and the protests, I was humbled. I was honored and I was so, so, so proud…”

Jim Vincent, of the Rhode Island branch of the NAACP was one of the more vocal critics of blocking the highway, but he kept his comments here to Rosa Parks and civil rights in general.

“We’ve always heard things in America like, ‘We hold these truths to be self evident, that all men and women are created equal’ and “justice and liberty for all’ but where has that been over the decades for people of color and black people in particular?”

Lauren Niedel of the Rhode Island Progressive Democrats saw the great lady as an example, and said, “Everybody here can be a Rosa Parks.”

Camilo Viveiros of the George Wiley Center tied racial to economic justice.

“Economic injustice has caused many to not have utilities throughout the year…. There continues to be a war against poor people, but many have given up on the war on poverty…”

Freethinker Peter Nightingale, of Occupy Providence and Fossil Free RI, gave a wonderful, and the most radical talk of the bunch.

“We need to change everything to break the chains of predator capitalism… We need degrowth, and we need a four hour workday. Degrowth means shrink the economy. I said it, put it on TV. He’s nuts…”

After the speakers there was a re-enactment of Rosa Parks’ nonviolent resistance on board a RIPTA bus, which was crowded to overflowing with onlookers and news cameras. Deborah L. Wray played the part of Rosa Parks.

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One week later, Ferguson protesters still marching in PVD streets


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DSC_7984Yesterday’s “March Against Police Violence in Solidarity with Ferguson and Mexico” was altogether different from last Tuesday’s Ferguson protest in Providence.

The organizers, the response of the police, the extent of the press coverage and the racial makeup of the attendees was not the same as last week. Even some of the subtleties concerning the goals of the protest were different, though to be clear, the main goal was to challenge racism, racial profiling, militarized policing and police murder of people of color.

DSC_7945The crowd started to build around 7pm at Burnside Park, with marchers working on their signs in the park with the materials provided by the organizers. There were less marchers this time and the crowd tended to be whiter, though there was substantial representation of people of color.

There was more of a police presence this time around. The police were never far away, and though they never interfered with the protesters, they made sure to let their presence be known.

Organizer Rebecca Nieves McGoldrick addressed the crowd in Burnside Park and said that given the events of last week, tonight was going to be a “pretty calm and peaceful protest,” by which I took her to mean that there were not going to be any arrests or provocative actions like flag burning or highway blocking. She was true to her word.

DSC_7972The plan was to rally at Burnside Park, march past the Providence Place Mall and to the steps of the State House, where there would be a four minute moment of silence for Mike Brown (one minute for every hour his body laid in the street) and then a “speak out” in which anyone could step forward and let loose whatever was on their mind.

DSC_7978The march through downtown and to the state house was guided by the police, whose red and blue lights provided an almost stereoscopic illumination. There were chants of “Hands up, don’t shoot” and “This is what democracy looks like” among others. There were many signs of support from passing motorists and mall patrons, but also one or two negative reactions.

Upon approaching the mall, I was amused to note that the police were blocking the highway on ramp, which I assume was meant to prevent protesters from storming up the ramp and blocking the highway a second time.

DSC_7989The big surprise of the evening was finding, upon our arrival at the State House, a phalanx of police officers standing at the top of the state house steps, protecting the building. It was an intimidating reminder of police power to have between 15 and 20 armed officers silently observe the protest from on high.

DSC_8005There was a solemn and somber four minutes of silence, interrupted only by the occasional chime of an unmuted cellphone, then the speak out began. I’ll have a rundown of what the speakers spoke about in a later post, after I’ve sorted out all the video, but for now let me present some highlights.

This march was organized to draw parallels and solidarity between what’s happening in the United States, where abuses of police power against black and brown people is a growing problem, and the terrible situation in Mexico, where the militarized drug war and an a destabilized government is resulting in the murder and disappearance of young protesters. Police forces in Iguala, Guerrero, Mexico murdered six people and “disappeared” 43 students from the Raúl Isidro Burgos Rural Teachers’ College of Ayotzinapa.

DSC_8009The growing militarization of police forces and the crackdown on human rights is world wide, from Hong Kong to Mexico to Ferguson.

The organizers of this protest put it succinctly:

“We are calling for the demilitarization of police. We are calling for police and government transparency and accountability. We are calling for an end to the drug war. We are calling for an end to neo-liberal policies that increase economic inequality and disenfranchise indigenous people and people of color. We are calling for an end to systems of institutionalized racial oppression. We are calling for justice.”

DSC_8013As the night wore on, and a light drizzle of rain and dropping temperatures thinned the crowd of protesters, over twenty people participated in the speak out. For the most part the listeners were polite and patient, and everyone who wanted to speak had their chance.

The last 20 or 30 protesters then turned to the silent police officers and handful of reporters who toughed it out to the end and waved farewell.

Like last week’s protest, this was a positive, cathartic experience, continuing the conversation around race and police violence. Legislators and elected officials take notice: things are changing.

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PVD firefighter investigated for Ferguson solidarity


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firefighter fergusonA Providence firefighter is being investigated for seemingly indicating solidarity with Ferguson protesters marching outside of the Providence Public Safety Complex last week, video of which was captured by Steve Ahlquist.

Walt Buteau, of WPRI 12, reports the firefighter, who has not been named “is the focus of an internal investigation into a gesture he made during a flag-burning protest in front of the Providence Public Safety Complex.”

The alleged show of support was captured on video by Steve Ahlquist (2:30 in video below).

Providence Public Safety Commissioner Steven Pare said police officers working the protest brought the matter to his attention, and the above video confirmed the incident.

“It’s a violation of rules and regulations,” Pare said. “Public safety officers are not allowed to protest or get involved in political activity when they are on duty.” Off duty public safety officials are allowed to express their political opinions, he added.

The firefighter could be reprimanded, Pare said but the action won’t be public because it’s a personnel matter, and he declined to give the man’s name.

“There was no doubt he was showing support,” said Pare. “When he raised his fist in support of the demonstrators, it incited them.”

Pare said he would follow the same procedure if, for example, an on-duty firefighter showed support for a union protesting a Gina Raimondo fundraiser. But he acknowledged that Ferguson protesters penchant for civil disobedience adds an element not present in the other example. “Is it more concerning because of the protests across the country, where we’ve seen some violence and some property damage, perhaps.”

Local 799 President Paul Doughty declined to comment on the issue.

RI ACLU Executive Director Steven Brown sent this statement to RI Future:

Unfortunately, recent U.S. Supreme Court decisions have severely cut back on the First Amendment rights of public employees in the workplace. Even so, seeking to punish a firefighter merely for silently expressing support for an anti-racism protest is troubling on a number of levels. After all, the City has taken the legal position that firefighters can be forced to march in a Gay Pride parade against their beliefs. It’s somewhat ironic if city officials believe they can demand that firefighters participate in a demonstration of solidarity for gay rights but then punish a firefighter for quietly demonstrating support for racial justice.

The response to this incident raises other questions. According to news reports, Commissioner Pare indicated that city policy may have been violated because the firefighter should have been “neutral” in a political protest.  While we can understand why police officers should generally demonstrate neutrality in a protest in which they are engaged in crowd control, did the police officer seen hugging a young protester in Ferguson engage in conduct that would have violated Providence’s “neutrality” policy? And even if such a policy makes sense for police officers in the middle of a demonstration, why must all other city employees demonstrate “neutrality” as well?  At a time of political unrest, is it a violation of “neutrality” for a city employee to publicly salute a flag in response to a flag-burning across town?

Obviously, a government agency can set reasonable limits on what employees can say or do in their official capacities, and we don’t wish to minimize the complicated nature of issues that can sometimes be raised by government employee speech.  But the investigation of the firefighter’s silent expression in this instance is problematic and undeserving of any sort of punitive response.

Does racial injustice still exist? Look at our schools


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gilbertstuart11Some people still ask if racial inequalities exist, or if they have a negative effect on society. The question that should be asked instead is why are the people in power making matters worse by turning a blind eye to the obvious problems at hand.

There are many forms, levels, and degrees of racial inequality, but preying on children and sabotaging their education so that they will eventually become easy victims of the judicial system must be the lowest form.

Ordinary people who harm children are punished by courts and despised by society, while politicians who harm children by ignoring the inequalities in public schools are not held accountable for their actions (or lack thereof). If kids are our most precious resource, why aren’t they treated as such? There is an abundance of learning tools, like new books, computers, and dedicated teachers in some public schools, while students of schools in low-income areas are sharing outdated books, have no computers, and are being taught by the worst teachers in buildings desperately needing renovation.

Lack of money is the common excuse, but I find this extremely hard to believe when there’s no lack of money in low-income areas for new handcuffs, police cars, and jail cells. Lack of money is a sorry excuse to deny public school students an adequate education.

The quality of education should not vary depending on each district’s budget. What would be so hard about collecting all the money from each district and putting it into a single account, to be distributed equally among public schools? This would give struggling schools access to money desperately needed to ensure all students receive an equal and adequate public education. I have attended inner city as well as suburban schools and observed the differences firsthand.

How can you tell a student to do their best if the people in charge of their education won’t do the same? The future of our society is in the hands of our children, so making sure they all have the best education possible needs to be a priority.

Racial injustice vs. property rights: Ferguson, RhodeMapRI and the American Dream


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Ferguson protestThere are two political gatherings today in Rhode Island that may have more in common with each other than it seems on the surface.

In Providence, there is a “march against police violence” in solidarity with the on-going Ferguson protests at Burnside Park, 7pm. In North Kingstown, there is an “informational meeting” about the ongoing RhodeMapRI flap at the Carriage Inn, also 7pm.

These two events will look much different. The march is at the center of urban Rhode Island and the meeting is on the outskirts of the suburbs. The march takes place on public property while the meeting is being hosted by the private sector. The march starts at the same park where Occupy Providence protested. The meeting is at a new upscale restaurant; salad = $9, steak = priced to market. The march will be multiracial while the meeting will be mostly white people. At face value, they will even be voicing very different messages: the march will focus on racial injustice while the meeting will focus on property rights.

But a deeper look at their concerns shows they are both dancing around the same issue. In Rhode Island life is nice in the suburbs, and some people want to preserve that. Life is not as nice in our cities, and some people want to change that. It’s absolutely not a coincidence that the area where people are looking for change are predominantly populated by Black and Brown people while the areas where people are looking to keep things the same are predominantly populated by White people.

The marchers want police to wear body cameras in hopes it will make law enforcement more accountable when tragedy occurs. But the people opposed to RhodeMapRI are vociferously opposed to any and all new government expenditures. The anti-RhodeMapRI activists feel strongly that affordable housing programs are bad, and that neighborhood planning is best left to market forces. Ferguson activists believe the invisible hand is largely responsible for the continued racial divide in Rhode Island and more, not fewer, public sector tools are needed to remedy this.

“We are fed up with economic injustice and inequality,” reads a Facebook invite about the march. “We are fed up with institutionalized systems of racial oppression. We are fed up with a system that serves the ruling class instead of the people.”

All citizens of our state should be made aware of this most insidious plan which will deconstruct our American Dream right here in Rhode Island if allowed to be adopted!reads a Facebook invite about the meeting.

Both events are about the American Dream. The Ferguson activists want more access to it. The anti-RhodeMapRI activists want to keep it for themselves.


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