Yurdin calls for review of National Grid’s proposed Fields Point expansion


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CKxVHLuXAAAJqO6City Councilman Seth Yurdin (Ward One) is sponsoring a resolution that calls for a comprehensive analysis of National Grid’s plans to construct a natural gas liquefaction facility in Providence. Currently, National Grid has a liquefied natural gas (LNG) storage tank at Fields Point; the new plant would process natural gas and convert it to liquid form on site. The resolution will be considered by the full City Council on Thursday, March 17th.

Yurdin, who has led multiple legislative initiatives addressing climate change and sustainability, said, “The proposal is a significant intensification of the current activity at National Grid’s Fields Point site—producing LNG is very different than storing it—and the impacts of that intensified activity need to be carefully and thoroughly studied, and communicated to the public.”

The LNG proposal is currently under consideration by the Federal Energy Regulatory Commission (FERC). Yurdin’s resolution notes that public health and safety, climate change, and environmental justice concerns must be evaluated closely as part of FERC’s review. The resolution states that, “Rhode Island is positioned to become a leader in renewable energy. . . supporting the proposed Fields Point liquefaction facility could undermine efforts to reduce Rhode Island’s reliance on natural gas and other fossil fuels.” Yurdin cited the Block Island wind farm, renewable energy incentives through Rhode Island’s Office of Energy Resources, and Providence’s ongoing initiative to divest from fossil fuels to exemplify the state’s leadership on addressing climate change.

“The development of the Fields Point liquefaction facility will continue to deepen our reliance on fossil fuels, when, in fact, we should be investing much more into clean, renewable energy sources,” Yurdin said. “The long-term cumulative impact of projects like the National Grid LNG will be devastating to our environment.”

Yurdin also noted environmental justice concerns regarding the facility’s proximity to South Providence and Washington Park—communities largely impacted by socioeconomic and health risks, including high rates of poverty, unemployment and asthma: “We cannot ignore that this project may increase health, safety, and environmental risks for already vulnerable populations living in close proximity to the site. We must address these concerns openly and fairly,” said Yurdin.

The resolution calls for a comprehensive environmental impact statement, which would include air quality and truck traffic studies; a risk management plan; and an inclusive public participation process. The City of Providence would hold public forums in multiple neighborhood locations and engage stakeholders to address concerns.

The resolution will be introduced at the City Council meeting on March 17, 2016 at 7 p.m., at City Hall, Council Chambers, Third Floor.

[From a press release]

Hip Hop 4 Flint in Providence Saturday


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Hip Hop for FlintHip Hop 4 Flint, an all ages show, is this Saturday, March 19 from 2-6pm at Avenue Concept, 304 Lockwood Street in Providence. Tickets are available here.

Providence, Rhode Island is one of 42 cities that will participate in a global fundraising initiative bringing together the Hip-Hop community in solidarity and support for the people of Flint and in partnership with the non-profit Price of Peace Missionary Baptist Church. Hip Hop 4 Flint will gather local, national, and international hip-hop artists, journalists, activists, educators and supporters to raise funds to purchase water filtration systems for the homes of the residents of Flint, MI. The lead organizer for Providence is Chenae Bullock. She has built a team of local Providence businesses, organizations, and talent to host an artist showcase that will help to raise $80,000 for the people involved in the Flint water crisis in Flint, MI.

YoNasDa Lonewolf, an emcee, published writer and activist who focuses her work on human rights, indigenous rights, and social justice, is the national leader for Hip-Hop 4 Flint. She was the creator of Hip-Hop 4 Haiti which took place on January 30, 2010 in 32 major cities. The youth and hip hop community hosted events to raise money, relief and awareness for the survivors of the devastating hurricane that hit Haiti in 2010.

Hip Hop 4 Flint will bring together notable Hip Hop artists such as Du “Doital” Kelly of Legendary Lords of the Underground, Hakim Green from Channel Live, Jon Connor of Afterman, Nappy Roots, and local artists from each city to join hearts and hands in support of the people of Flint. To help the cause, we have partnered with emcees OCKZ, SKYZOO, and QUADIR LATEEF who will donate 20 percent of the proceeds from the “Rise Up” iTunes single to #HIPHOP4FLINT. The single sells for $.99 on iTunes.

The overall goal is to raise $80,000 collectively among the 45 cities, about $2,000 from each city. The money will go to purchase water filters that will get the lead & other things out of the water. We are shooting to get two per household, one for the kitchen and one for the bathroom as well as plumbers to install them correctly. Prince of Peace Church is the designated 501c3 organization that will accept the money.

The city of Flint, MI is home to 100,000 residents, of which 40 percent are living in poverty, with an average income of $25,000. In 2014, while the city was under the control of a state appointed emergency manager, the city switched its water source from Lake Huron to the Flint River. The city saw a sharp increase in lead levels that were well above the EPA’s standards of safety, exposing the city’s 9,000 children to water with lead levels that are classified as toxic waste and leading to the declaration of a citywide state of emergency. The children of Flint have been hit the hardest, which some experience permanent and devastating health defects from lead poisoning. In addition to lead contamination, there is a larger problem looming in Flint with a recent outbreak of legionella bacteria, which infects the lungs, causing pneumonia, which is then referred to as Legionnaires Disease. To date there have been ten deaths due to Legionnaires Disease.

Providence will be one of the 42 cities organizing and fundraising to purchase home water filtration systems for residents that will filter both lead and bacteria throughout the entire home, making the water safe for both consumption and washing.

Hip Hop 4 Flint Providence will host an artist showcase that will be streamed live on ALLHIPHOP.com and Stagehound TV.

We currently have a Go Fund Me for those that would like to make a donation. All money will go toward the purchase of filters, which will be delivered personally, home by home, to the residents of Flint by the Hip Hop 4 Flint delegation.

During Sunshine Week, ACLU seeks court order for the release of documents a local journalist has sought for years


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acluThe American Civil Liberties Union of Rhode Island has asked a federal court to order the U.S. Drug Enforcement Administration (DEA) to release thousands of pages of documents in support of its Freedom of Information Act (FOIA) lawsuit on behalf of local journalist Philip Eil, who has been stymied for years in his effort to obtain from the DEA evidence disclosed at a major prescription drug-dealing trial. In its motion for summary judgment filed yesterday, the ACLU called for the release of  “the wrongfully withheld documents post haste.”

In a 15-page memo, ACLU volunteer attorneys Neal McNamara and Jessica Jewell, from the law firm of Nixon Peabody, argue that the DEA has wrongfully withheld thousands of pages of evidence shown during the 2011 trial of Dr. Paul Volkman, whom the Department of Justice calls “the largest dispenser of oxycodone in the country from 2003 to 2005” and who is currently serving four consecutive life terms in prison.

Requesting the prompt release of this trial evidence, McNamara and Jewell write, “The government cannot on the one hand hold this case up as an example of how it investigates and prosecutes diversion cases and on the other state that the majority of the evidence used to convict such a defendant is not actually available to the public.  FOIA is meant to prevent such ‘secret law.’ The general public clearly has an interest in knowing how Volkman was investigated and prosecuted.”

In support of the motion, the memo further notes that the federal government itself has uploaded to a publicly accessible judicial records website some of the documents it continues to withhold from Eil.

The ACLU’s legal memo was accompanied by an eight-page affidavit from Eil, in which he describes an array of obstacles he faced while covering the Volkman trial. Before the trial began, Eil says a DEA agent told him he could be charged with witness tampering for conducting interviews with potential witnesses. In 2011, while attending the trial, in Cincinnati, he was subpoenaed for testimony by the lead prosecutor and barred from re-entering the courtroom, though he was never actually called to testify. When he filed his FOIA request with the Department of Justice in February 2012, the agency took more than three years to fully respond, and withheld more than 85 percent of the pages it processed. Many of the pages released were significantly redacted.

“In 2009, when I learned of Volkman’s indictment, I set out to tell the story of a highly-educated man – my father’s former classmate – who became one of the most notorious prescription drug dealers in U.S. history,” Eil states in the affidavit. “As we approach the five-year anniversary of the verdict in that case . . . I am astonished that the vast majority of evidence from his trial remains sealed off to that case’s plaintiff: the American public.”

ACLU of Rhode Island executive director Steven Brown stated: “I am hopeful that the court will put a stop to the DEA’s flippant attitude towards the Freedom of Information Act.  The agency’s siege mentality in trying to wear out Mr. Eil through years of delays amounts to an appalling attack on the public’s right to know.”

The DEA (represented by the office of Rhode Island U.S. Attorney Peter Neronha), has until May 4th to respond to the ACLU’s motion, with rebuttal memos due in June and July. Oral argument will likely be heard before U.S. District Judge John McConnell, Jr. sometime later this year.

These filings take place during Sunshine Week, a week designated to educate the public about the importance of open government, and at a time of heightened criticism of President Barack Obama’s transparency record.  In 2015, the Associated Press reported that the Obama administration had “set a record again for censoring government files or outright denying access to them” in 2014. And, last week the Freedom of the Press Foundation reported that “the Obama administration – the self described ‘most transparent administration ever’ – aggressively lobbied behind the scenes in 2014 to kill modest Freedom of Information Act reform that had virtually unanimous support in Congress.”

Eil is an award-winning freelance journalist who served as the news editor and staff writer at the Providence Phoenix until the paper’s closing in 2014. He has since contributed to VICESalon, the AtlanticRhode Island Monthly, and elsewhere. He has conducted more than 100 interviews, across 19 states, for his book about the Volkman case.

Community protests Care New England’s planned closure of Memorial Hospital Birthing Center


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Hundreds of people rallied outside Care New England offices in Providence this morning to demand that the Birthing Center at Memorial Hospital in Pawtucket stay open. Organized by the Coalition to Save Memorial Hospital Birthing Center, nurses, community members, mothers and “bucket babies” carried signs and were enthusiastically supported by passing motorists blaring their horns.

I spoke to Rita Brennan, a nurse at the Birthing Center and the president of UNAP Local 5082, representing the nurses there. Brennan says that the loss of the birthing center and the other units at the hospital Care New England plans to shut down will cost the state over 200 jobs.

Implementing the shut down and restructurings has been delayed due to the the intercession of the RI Department of Health (RIDOH), which pointed out that the closing was a breach of contract with the state.

RIDOH Director Nicole Alexander-Scott wrote, “Memorial Hospital is obligated to continue providing all existing services to patients. Memorial Hospital is not permitted, until the process is complete, to make any changes to the primary or emergency services currently offered, including maternal and delivery services.”

Next week there will be three public meetings to allow the public a chance to speak out on Care New England’s plan.

According to the Coalition, the dates, times, and locations of the public meetings organized by the Department of Health are:

March 14th: Goff Junior High School, 974 Newport Avenue, Pawtucket (use the Vine St. entrance); 5:00 PM to 7:00 PM

March 16th: Woodlawn Community Center, 210 West Avenue, Pawtucket; 11:00 AM to 1:00 PM

March 17th: Segue Institute for Learning, 325 Cowden Street, Central Falls (use the Hedley Ave. entrance); 4:00 PM to 6:00 PM

If you are unable to attend one of the public meetings in person, you can email comments to Paula.Pullano@health.ri.gov or mail them to: Rhode Island Department of Health, Center for Health Systems Policy and Regulation, 3 Capital Hill, Providence,RI 02908.

Comments will be accepted through March 25th. Comments can be submitted or shared anonymously. Although all comments from the public will be documented and considered carefully, the Department of Health will not be able to respond directly to any comments that are submitted or voiced.

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Let Mt St Charles know how you feel about their trans exclusion policy


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Love UnconditionallyIf you’re reading about the policy at Mount Saint Charles Academy that’s banning trans students from attending their school and feeling angry or sad because there’s nothing you can do to combat this bigotry, well, feel better, because I’ve got some ideas.

First, plan to get up real early tomorrow morning and head out to Mount Saint Charles Academy, 800 Logee St, Woonsocket, Rhode Island 02895 by 7:30am for a peaceful protest of the school’s policy. Mount Saint Charles Academy is holding their entrance exam for incoming students at 8:15am, so parents will be dropping off their students for the exam.

Organizers AJ Metthe and Anthony Maselli ask that people bring, “peaceful & positive signs and messaging only… Let’s show them this new policy is one that goes against their own values statement that ‘every student is known, valued, treasured.’ Let’s show them that the Gospel preaches love for ALL, not hate and exclusion.”

The event is expected to run from 7:30 – 8:30am.

Mount Saint Charles Academy LogoThe other thing you can do is sign the petition.

David Coletta has started a petition on Change.org asking Mount Saint Charles Academy President Herve Richer to, “leave the hateful rhetoric in the past” and accept Trans students. “Sign this petition to let [Mount Saint Charles Academy] know that all students with a desire to learn and excel should be allowed that opportunity, gender aside.”

As of this writing the petition has nearly 600 signatures, and this story hasn’t gone national yet. It’s poised to.

“As a transgender graduate I am both shocked and deeply disappointed,” said one signer. “I am signing this because as of today, I am ashamed to be a Mount Saint Charles Graduate,” said another.

Finally, you might consider reaching out directly to those who run the school. Here’s a link to their contact page.

RI Future will continue to cover this important story. Meanwhile:

Patreon

Bernie Sanders in Milton ahead of Super Tuesday


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2016-02-29 Bernie Sanders 002Waiting for Bernie Sanders in the press line outside Milton High School in Massachusetts ahead of Super Tuesday, I talked to Rita Colaco, a journalist from Portugal. She’s surprised that I know where Portugal is, because most Americans she talks to think her country is part of Spain, or Puerto Rico. She was at a rally for Hillary Clinton in Boston earlier in the day, and now she’s covering a rally for Sanders. She’s in the United States for four days to cover Super Tuesday.

“So what do they think about this election in Portugal?” I ask.

“They think what you’re thinking over here,” says Colaco, “They see the popularity of Trump as funny.” The way she says funny, she doesn’t mean “Ha-Ha” funny. People from around the world are worried about what a Trump presidency means.

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John May

“I wouldn’t be here from Portugal if it wasn’t for Trump,” says Colaco. She hasn’t been able to find a rally for Trump in Massachusetts yet, though.

Inside the rally I meet an older couple who support Sanders, but they are realists, and will happily switch to Clinton if they have to. “We can’t let Donald Trump or Ted Cruz win,” says the woman, “That would be terrible, and I’m too old.”

John May from Franklin holds home made signs in support of Medicare for All. He knows the sales pitch well. “You can’t tell me that we can’t afford to do, in America, what every civilized country on Earth already does,” says May.

2016-02-29 Bernie Sanders 028May lost two friends to pancreatic cancer years ago. They were diagnosed within weeks of each other and they died within weeks of each other. Their treatment was the same. The only difference between the two is that one friend lived in Denmark, the other in the United States.

The friend in Denmark, says May, spent his last six years of life with family and friends, unconcerned about the economic impact of his disease on himself and his loved ones.You can only begin to imagine the last years of the life of his American friend. That massive qualitative difference made May a supporter of single payer healthcare, and by extension, a supporter of Sanders.

My last conversation was with three girls, between 10 and 12 years old. They monkeyed around in front of my camera and were eager to be interviewed, but the adult with them asked that I not use the footage, since he wasn’t sure about their parent’s permission.

I asked the girls who they’re voting for.

2016-02-29 Bernie Sanders 001“We can’t vote,” said the oldest, “but my Dad’s voting for Trump.”

“Trump?” I asked.

The girl shrugged. “Whatever.”

“I can’t decide between Bernie Sanders and Marco Rubio,” said the second girl.

“Really?” I asked, “how does that work? They’re not much alike on the issues.”

“I don’t know,” she said, honestly. “I just like them.”

“I’m still deciding between Hillary Clinton and Bernie Sanders,” said the youngest girl, “That’s why I’m here, to listen to what Sanders has to say.”

“You know,” I replied, “that makes sense.”

Then Sanders took the stage.

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Health insurance industry lawyer makes the case for single payer


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Single Payer NowIn speaking out against a bill that would make sure no pregnant person could be denied medical coverage due to their pregnancy, a health insurance lawyer unintentionally made a great case for a national, single payer health program.

Shawn Donahue is an attorney at Blue Cross & Blue Shield of Rhode Island and last Tuesday he spoke at the House Corporations Committee meeting to oppose a bill that would ensure “no pregnant applicant for medical insurance coverage would be denied coverage due to her pregnancy.”

I want to stress at the outset that Donahue seems like a decent man, and I sensed that he was somewhat uncomfortable speaking out against this bill.

“No one believes in the importance of pre-natal care more than Blue Cross,” said Donohue, “We’ve invested in it.”

That’s true. “Getting early and regular prenatal care is one of the most important things you can do for the health of both you and your baby,” says Blue Cross on its website. The site contains a wealth of information and advice on healthy pregnancies. But we don’t have to assume that Blue Cross is promoting neonatal care out of any sense of public service. Healthy pregnancies are cheaper for insurance companies. An insured baby, with proper neonatal care, is less likely to have expensive health problems going forward.

The importance of prenatal care is underscored by the health risks associated with not having such care.

“Women in the United States who do not receive prenatal care have an increased risk of experiencing a neonatal death… Lack of prenatal care is associated with a 40 percent increase in the risk of neonatal death overall…” says the Guttmacher Institute, citing a study, “Black women are more than three times as likely as white women not to receive prenatal care, and regardless of their prenatal care status, their infants are significantly more likely to die within their first 27 days of life than are infants born to white women.”

Other risks from not receiving adequate prenatal care include low birth weight for the infant, and pre-eclampsia, a form of organ damage, that affects the mother. From a human perspective, this is terrible and unnecessary. From the perspective of an insurance company, such health problems are expensive.

Yet, said Donohue, speaking for Blue Cross at the Rhode Island State House, “The only way insurance works is if you purchase it when you don’t need it so it’s there for you when you do. If you allow people a special enrollment period, whether they’re diabetics, cancer patients or pregnant people, they won’t buy it until they need it.”

The Affordable Care Act (ACA or Obamacare) mandates that Rhode Islanders buy private insurance on the state run health insurance exchange, HealthSourceRI. “If you’ve missed the open enrollment period,” said Donohue, “ you’ve broken the law and now you are penalized for that, and the penalties start to grow.”

Donahue is talking about financial penalties of course, but the real penalties from a societal point of view are dead babies, or babies and mothers with terrible health outcomes. Suddenly the financial penalty for not complying with the ACA mandate seems rather small and meaningless, doesn’t it? But more to the point, it’s exactly these negative health outcomes that Obamacare was supposed to address.

2016-01-02 Bernie Sanders 282“We don’t let people buy insurance on their way to the hospital in an ambulance,” said Donahue. I would say that having to worry about financial issues during a medical emergency is a major system failure, and further, these gaps in care for vulnerable Americans expose the weaknesses in today’s for-profit health insurance industry, of which Blue Cross & Blue Shield of Rhode Island is a big part.

According to Physicians for a National Health Program (PNHP), “Single-payer national health insurance, also known as ‘Medicare for all,’ is a system in which a single public or quasi-public agency organizes health care financing, but the delivery of care remains largely in private hands. Under a single-payer system, all residents of the U.S. would be covered for all medically necessary services, including doctor, hospital, preventive, long-term care, mental health, reproductive health care, dental, vision, prescription drug and medical supply costs.

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“The program would be funded by the savings obtained from replacing today’s inefficient, profit-oriented, multiple insurance payers with a single streamlined, nonprofit, public payer, and by modest new taxes based on ability to pay. Premiums would disappear; 95 percent of all households would save money. Patients would no longer face financial barriers to care such as co-pays and deductibles, and would regain free choice of doctor and hospital. Doctors would regain autonomy over patient care.”

On the national scene Bernie Sanders has championed single payer, calling it Medicare for All. “Health care must be recognized as a right, not a privilege,” says Sanders, “Every man, woman and child in our country should be able to access the health care they need regardless of their income. The only long-term solution to America’s health care crisis is a single-payer national health care program.”

State Representative Aaron Regunberg has introduced, for the second time, a bill to bring the benefits of a single payer health insurance program to Rhode Island. His bill would “act would repeal the ‘Rhode Island Health Care Reform Act of 2004 – Health Insurance Oversight’ as well as the ‘Rhode Island Health Benefit Exchange,’ and would establish the Rhode Island comprehensive health insurance program.”

His bill deserves our support.

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AG’s office and OHIC seem to be patching things up


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Remember last summer when Attorney General Peter Kilmartin took the Health Insurance Commissioner to court over her decision on Blue Cross rates for individuals? Well, there are now some encouraging signs that these two government agencies are ready to patch things up.
At the House Committee on Corporations meeting Tuesday, representatives from the AG’s office and the Office of the Health Insurance Commissioner (OHIC) spoke in favor of compromise legislation that would allow both agencies to continue to be involved in health insurance rate approvals under certain conditions.
At the center of the issue is the unique process that Blue Cross & Blue Shield of RI (BCBSRI) is subject to when it comes to their individual plan rates.
All Rhode Island health insurers must submit any proposed rate changes to OHIC for approval before they can take effect – an annual process called “Rate Review.” OHIC staff dig deep into the insurers’ justification for their new rates, perform their own actuarial analyses, and solicit public comment from consumers.
This Rate Review process applies to all commercial health plans, except for BCBSRI’s individual market offerings – so-called “DirectPay” plans. That’s because an antiquated law from back when BCBSRI was the only option available to a consumer who wanted to purchase a health plan direct for his or her family.
The law subjects any proposed rate changes for the DirectPay plans to a special and totally separate process that involves the AG’s office and includes a formal hearing with a hired hearing officer where any consumers wanting to speak must testify under oath. These separate processes have confused consumers – we’ve been at Rate Review public comment sessions where DirectPay subscribers have come to speak only be to shut down by the Commissioner, who legally cannot hear their comments.
But the legislation submitted by Representative Mary Duffy Messier on behalf of the AG’s office would subject all health insurers to the same process and call for a formal public hearing and notification of the AG’s office only when the requested rate increase is 10 percent or more. It also allows OHIC to still hold the less formal public input meeting even if a hearing is necessary, allowing greater consumer access to participation in the process.
The AG’s office, OHIC and Blue Cross all signaled general support for the bill when it was heard in committee on Tuesday. The bill was held for further study.
Last year, the Attorney General disagreed with the Commissioner’s decision on the DirectPay rates and took her to court. OHIC ultimately won, but the legal spat held up rate approvals.
Both the Attorney General and the Health Insurance Commissioner are working in good faith to protect consumers, and this legislation lets them both continue to have a role in rate approvals. It will strengthen consumer protection, preserve consumer access to the process, and best of all, it will finally correct an outdated law and subject all health insurers to the same fair process.

Assisted suicide is based on systemic oppression


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Barbara Wagner
Barbara Wagner

As a scholar in the field of disability studies, it seems obvious to me such structural oppression precludes a public capacity to regulate assisted suicide. Neither the government, the medical profession, or the social justice community have the capacity to detect, respond to or stop the injustices that inevitably occur in offering suicide to people who are experiencing some form of disability.

Laws cannot remediate systemic conditions that disadvantage certain identity groups. Hence, most disability rights activists share the proponents position that what they call “aid in dying” is a social justice issue, but we believe that as proponents of what is actually assisted suicide, they are on the wrong side of it.

Patient/Doctor Miscommunication, The Mask, and Lowing Standards of the Psychiatric Profession

Unlike most states where assisted suicide legislation has been proposed, Massachusetts requires people seeking assisted suicide to see some sort of counselor before obtaining the means to end their life. This is not due to the proponents’ earnest desire to prevent abuse, but because MA groups like MPOWER, Second Thoughts, and others have demanded that people with psychiatric illnesses have at least this slim, tenuous chance of having their condition recognized in the course of applying for

In order to illustrate: There is no way to enforce the “safeguards” written into the Oregon law, hence, the latter are profoundly permeable and subject to manipulation. for instance, if someone’s doctor detects depression and refuses to write a lethal prescription, Compassion and Choices (Hereafter C&C) will refer them to someone who will. For instance, shortly after the Oregon passed its “Death with Dignity Act,” C&C facilitated the suicide of a woman named Helen whose doctor had attempted to refer her for psychiatric care. According the Michigan Law Review:

“The medical director of Compassion in Dying said…Helen was ‘frustrated and crying because she was feeling powerless. He said she had been doing aerobic exercises up until two weeks before she contacted him but told him she could not do them anymore.'”

In short, C&C’s medical director put himself in the role of a psychiatrist; on a functional level, he lowered basic standards for the provision of psychiatric care to depressed patients. According to C&C’s logic, a terminally ill person who wants to die is rational because they have become disabled, and their right to die is absolute.

Moreover, Oregon’s statistics are reported by doctors who participate in assisted suicide; the latter have a clear interest in concealing any misbehavior. Most people are reluctant to admit that they broke the law; much less that they facilitated the death of an unwilling person.

Suicide Contagion/No Family Notification:

Suicidal people in Oregon have used right-to-die literature and devices to bring about their deaths. In 2011, Nick Klonoski, A twenty-eight year old Oregon resident purchased an “exit bag” from a right to die activist who was selling them online and used it to commit suicide.

Although C&C often frames the right to die in terms of individual and familial autonomy, none of the existing or proposed laws require individuals to notify their families. Hence, such laws offer no protection against the psychological effects of “common” suicide and will inevtiabley subject grieving families to a horrible form of social invalidation: “Gee, we’re sorry that this law facilitated your family member’s suicide; but other people want the right to die.”

The Right to Die Movement Does not Believe in Restricting that Right to Those who Are Dying

Unfortunately, many people use the term “slippery slope” to refer to what might happen if assisted suicide were legalized. It’s much more appropriate to think of assisted suicide in terms of systemic inequality that fall outside the letter of any law. For instance, Canadian Supreme court recently legalized assisted suicide for anyone with an “irremedial medical condition;” including every member of the disabled community, whether our disabilities be cognitive, physical, or psychological. Compassion and Choices released a press statement in support of that decision.their expression of support for this ruling contained no such caveat.

Moreover, during a 2014 visit to Connecticut, Barbara Coombs Lee said that assisted suicide for people with dementia was “a question for another day, but no less compelling.” During a 2015 interview with the Christian Century, Coombs Lee asserted, “it isn’t just about pain, everyone has their own definition of suffering.”

Media reporting on this issue also has the capacity to manipulate public opinion in favor of expansion.For instance, the last few months have included national coverage of the following stories: Washington Post:Should People with Acute Mental Suffering Have a Right to Die?”

Recently, Colorado introduced a ballot initiative that would legalize assisted suicide (the ingestion of lethal drugs) and euthanasia (through intravenous drugs):

Coloradans do not currently have the liberty to pursue happiness by obtaining a medical professional’s assistance in achieving a peaceful death thru the administration of oral or intravenous drugs. (3) The people of Colorado hereby proclaim that mentally competent adult residents of Colorado are Sovereign in the matter of personal medical decisions and have the liberty at life’s end to set the time and tone of their own deaths, asking permission of no person or organization.?The people of Colorado hereby further declare that any person or group assisting a Sovereign as defined in Section 3 above obtain Medical Aid In Dying is immune from prosecution upon presentation of acceptable documentation of the voluntary nature of the action..the Sovereign’s right to obtain Medical Aid In Dying is not limited to the maintenance of mental competency only, but can be durable into incompetency if desired and documented.”

The language of this ballot initiative contradicts C&C’s statements regarding euthanasia and its application to incompetent individuals. Hence, proponents are asking disability activists to embrace a naïve understanding of their agenda. They’re asking us to accept the canard that their agenda doesn’t include members of our community; in the face of evidence that doesn’t lend itself to that conclusion.

The Provisions of The Law Make it Difficult to Prosecute Those Who Commit Crimes

It is common for people who kill disabled family members to receive sympathy. For instance, In 1993, Robert Latimer murdered his daughter, Tracy, because she had Cerebral Palsy. At the time, Canada’s primary right-to-die organization said that Latimer should not be prosecuted for that crime because he had served his sentence for the twelve years that Tracy was alive. Latimer is now an outspoken right-to-die advocate. Shortly after the Canada verdict was read, news outlets asked Latimer for his opinion. “I think it was a step in the right direction,” he said. Ultimately, the disability rights community’s objections to assisted suicide don’t stem from fears of any specific act, but of the broader political zeitgeist that they represent.

Systemic Classism in the Practice of Assisted Suicide

In 2008, an Oregon resident named Babara Wagner made videos opposing the legalization of assisted suicide in Washington and Massachusetts.

Wagner had recently received a letter from Oregon’s Medicaid program informing her that it would not pay for chemotherapy to treat her cancer; but it would cover the cost of barbiturates used for assisted suicide. Another Oregon resident named Randy Stroup also received such a letter. The latter is an excellent example of how classicism impacts experiences of assisted suicide. A more affluent person may be able to pay for chemotherapy, but Medicaid recipients are constrained by whatever resources that the state is willing to put into their care.

Barbara Coombs Lee, the director of C&C, seems oblivious to such nuances. In her 2008 , “Sensationalizing One Sad Case Cheats the Public of a Sound Debate,” Coombes Lee described Wagner as: “A 64-year-old Springfield resident with end stage lung cancer, a life-long smoker enrolled in the Oregon Health Plan.”

Regardless of what her intentions were, Coombes-Lee evoked our culture of ableism and victim-blaming by making certain to emphasize Wagner’s age and her history of smoking. She went on to suggest that Wagner and her doctor had been foolish:

“The burning health policy question is whether we inadvertently encourage patients to act against their own self interest…and foreclose the path of acceptance that curative care has been exhausted and the time for comfort care is at hand. Such encouragement serves neither patients, families, nor the public.”

The classicism and paternalism associated with that perspective is inherent in the fact that as someone making $200,00 a year, Coombs Lee does not need Medicaid; and would never, ever be in Wagner’s position.

Indeed, Coombs Lee’s 2008 editorial contrasts sharply with a piece that she recently wrote for Time Magazine, which eschews her earlier advice not to focus on one sad case and celebrates the fact that “Britney Maynard’s Memory is Helping Us Achieve Death with Dignity.” In that column, she wrote:

Since Brittany’s death, nationwide demand for similar state laws has skyrocketed.Recent national polls show 74 percent of Americans and 54 percent of U.S. physicians want aid in dying to be an authorized medical option. They see that those who would deny patients this option are out of sync with new, and more just, expectations around end-of-life decisions.”

Given the significant class difference that existed between Maynard and Wagner, this column espouses a rather odd conception of justice that is unmindful of how privilege impacts interaction with the medical sphere. From a functional standpoint, C&C has played on the media’s tendency foreground the experiences of privileged individuals like Maynard while simultaneously eschewing public sympathy for people like Wagner.

Ultimately, the most important statement that I can make is this: It’s important to emphasize that ultimately, objections to assisted suicide do not stem from the paternalistic idea that disabled or terminally ill people are incompetent to make decisions for themselves; they stem from an awareness of; and a desire to prevent further casualties of, systemic injustice.

Medical marijuana tax opponents rally at State House


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2016-02-23 Med Marijuana Tax 006Opponents of Governor Gina Raimondo‘s proposed tax on medical marijuana gathered outside the State House Tuesday evening to raise awareness about what some have called “an absolutely cruel proposal” to tax medical marijuana.

There is no other proposal like it anywhere in the country, and under Raimondo’s proposal marijuana will be the only medicine taxed in this way. Since the proposal has been inserted into the budget, rather than submitted as a bill, there will be no opportunity for the public to comment on the idea in House or Senate committee meetings so the only route opponents can follow to stop this plan is to pressure their Representatives to remove the item from the budget or refuse to pass the budget if the tax is not removed.

2016-02-23 Med Marijuana Tax 010Almost more pernicious than the tax, though, are the other provisions included in what amounts to a complete restructuring of the way medical marijuana is done in our state. Those who grow their own marijuana will be forced to comply with a 75 percent reduction, six plants only, drastically reducing the amount of medicine available to patients.

Caregivers, those who grow marijuana for others may only posses 24 plants.

Opponents, such as Responsible Caregivers of Rhode Island, say this will not allow caregivers to provide an adequate amount of medicine for their patients.

2016-02-23 Med Marijuana Tax 017Then there is the financial devastation this plans wreaks upon caregivers. Purchase tags are now required for all plants. $150 per plant for patients who grow their own and $350 for each plant raised by caregivers for others. This makes the cost of farming marijuana prohibitive, and many will not be able to afford this. I earlier talked to a veteran who uses marijuana, legally, to keep himself from becoming re-addicted to opioids.

Since cultivating plants is essentially farming, a loss of a crop from infestation or power loss (marijuana is cultivated with grow lights) could mean that a person’s entire investment and crop will be lost. This will be a loss of money and vital medicine. Further, the process of farming marijuana is not an exact science. If the plants yield extra marijuana the law allows a grower to “gift” the excess to those in need. Raimondo has disallowed gifting in her proposal.

You can see Raimondo’s proposed changes to the law starting on page 194 of her proposed budget here. The reasoning behind this proposal is baffling. It is simply cruelty, and in truth, much damage has already been done to a community that uses medical marijuana to treat terrible illnesses and disabilities.

As Jared Moffat, executive director of Regulate RI said at the rally outside the State house today, rather than tax the medical marijuana that patients need, why not tax the use of recreational marijuana as is being done in Colorado with great success?

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Veterans worry about Raimondo’s proposed medical marijuana tax


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Steve VetAs I walked towards the State House on Tuesday for the Taxation Is Not Compassion event, I met Steve, a disabled veteran.

Steve served in Iraq in 2005. After he was injured, the Army gave him morphine and Oxy for his pain. That started a five year addiction to opioids. After cleaning himself up, Steve relapsed, but soon found that medical marijuana helped him deal with his medical issues without the need for opioids. Governor Gina Raimondo’s proposed tax on medical marijuana frightens Steve.

“22 vets commit suicide every day in this country,” said Steve, “but if they overdose on opioids their deaths are called accidental overdoses.”

This evening Steve will be meeting with fellow veterans to try and figure out how best to defeat Raimondo’s proposal.

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Talking about end-of-life options in Rhode Island


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Tim Appleton
Tim Appleton

Tim Appleton, campaign manager at Compassion and Choices, was talking to a full room about “medical aid-in-dying.” This would take the form of legislation that would allow a terminally ill, mentally capable person with a medical prognosis of six months or less to obtain and, if their suffering becomes unbearable, self-administer medication that brings about a peaceful death.

This is presently the law in five states: Oregon, Washington, Montana, Vermont and California. One in seven Americans currently have this option available. In Rhode Island, if a person wanted this option, their best bet would be to establish legal residency in Vermont. Obviously, this is not something that everyone can do.

Compassion and ChoicesLast year, the Lila Manfield Sapinsley Compassionate Care Act, introduced in the State Senate by Gayle Goldin and in the House by Edith Ajello, died in committees. Whether or not the legislation will be reintroduced this year is an open question. What the legislation needs is a group of passionate supporters ready for a multiyear effort at the State House to make this happen.

Last year the Catholic Church and some members of the disabled community spoke out against the bill. The opposition from the Catholic Church is to be expected. Across the country the Church has spent millions of dollars defeating similar legislation in other states, mostly by telling stories about people being coerced into taking their lives. For the disabled community these stories of misuse and coercion are serious concerns, but Appleton is clear that in the United States, where this idea has been law for nearly two decades, there has “not been a single case of abuse, misuse or coercion.”

Opponents present a false choice between hospice care and aid in dying, but in reality the two ideas are complimentary. Hospice works to manage pain through the process of dying, while this legislation allows the option of ending one’s life in the event the suffering becomes unbearable. This brings a sense of comfort and control to a terrible situation.

The simple fact is that any one of us may one day be in the position of wanting to end our life in the event of a terminal, painful illness, or we may be the caretaker of a loved one suffering through the process. Each of us confronts the end of our lives differently, and this option is not for everyone.

As Governor Jerry Brown said, when he signed California’s act into law, “I do not know what I would do if I were dying in prolonged and excruciating pain. I am certain, however, that it would be a comfort to be able to consider the options afforded by this bill. And I wouldn’t deny that right to others.”

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New standards set for health insurance providers


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Commercial health insurers in Rhode Island will need to have 50 percent of their payments based on quality by 2018 under a new plan announced by the Office of the Health Insurance Commissioner (OHIC) Thursday.
Shared goals between public and private payers are seen as crucial to the success of healthcare reform efforts. The Alternative Payment Methodology Plan is meant to further align commercial insurance payments with those of public payers-Medicare, and the state’s nationally recognized reinvented Medicaid program.
Beginning in 2017, commercial health insurers will be required to direct 40 percent of medical payments through quality and efficiency-based payment models, increasing to 50 percent in 2018.
Along with the alternative payments plan, OHIC also released this year’s Care Transformation Plan, which requires insurers to continue to grow and support patient-centered medical homes.
This all comes out of OHIC’s Affordability Standards, which were first established in 2009 by then-commissioner Chris Koller. Under the direction of the current Commissioner, Dr. Kathleen Hittner, OHIC updated and enhanced the Affordability Standards last summer following a year-long public review and input process.
Included in the new Standards was the establishment of two advisory committees charged with developing yearly plans to reach long-term goals. The Alternative Payment Methodologies Committee is focused on shifting from the old fee-for-service model to payments based on quality and value rather than volume; and the Primary care Transformation Advisory Committee deals with supporting the development of primary care infrastructure and coordinated, high-quality, patient-centered care.
As is usually the case in the Rhode Island health policy world, these advisory committees featured a diverse group of stakeholders. Representatives from the carriers, provider and hospital groups, the employer community, and consumer advocacy organizations were at the table. With support from OHIC staff, they crafted the plans announced yesterday which will guide commercial payers for the next year. Both committees will reconvene in the Fall.

Lead poisoning in Rhode Island


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[A version of this article was originally published by The College Hill Independent on February 12, 2016.]

435px-Symptoms_of_lead_poisoning_(raster)Several men huddled around a fire hydrant late on a recent winter night. They were workers with Providence Water, a state-regulated department of the City of Providence that provides the capital with its water supply. They were flushing the main, the large pipe that runs down the center of a street, by releasing a high velocity stream of water from the hydrant. Over time, minerals from the water build up on the walls of the pipe, tightening its aperture and reducing flow and water quality. According to the workers, these flushes have nothing to do with lead.1  Providence, the workers were quick to point out, has the second best water in the country.

The claim that Providence has the second best water in the country used to appear on the homepage of Providence Water’s website, until it was removed sometime between October 16 and December 16, 2014. This despite the fact that in 2012, 2013, and 2014 the water consumers got from the tap exceeded the Environmental Protection Agency’s (EPA) lead action level, being the level of concern at which remedial measures are triggered under the Safe Drinking Water Act. Under the provisions of the Safe Drinking Water Act, the utility was required to distribute brochures notifying customers of elevated lead levels in all three years.

The most recent legally required notification of high lead levels was issued May 28 of last year. 2015 water quality data has not yet been released, but a spokesperson for Providence Water, Dyana Koelsch, told the Independent that “the latest testing shows that we do meet current regulations.” It is important to note, however, that meeting current regulations does not mean that the lead levels are below the EPA’s level of concern. For example, an excessively high lead level coupled with an informational brochure is fully in compliance with federal regulations without indicating that water lead levels are safe. As of the time of writing, water quality data had yet to be released.

But the tests that produce such data may be intentionally misleading. UK newspaper the Guardian recently exposed several US health departments for giving at-home water-testers instructions that would lead to systematically underreporting the amount of lead in tap water. The Rhode Island Department of Health allegedly instructed residents selected to participate in the testing to run their taps “until cold” before filling the sample bottles, a practice that reduces the amount of lead in the water and does not reflect the lead content of water that has been sitting in the pipes for several hours (like, for example, when you wake up in the morning).

Koelsch called the Guardian’s claim a “misunderstanding” and said that, while the utility would not go “tit-for-tat” with a newspaper, she conceded it would indirectly rebut the accusation by communicating “the truth.” Providence Water has not yet communicated a statement to the Independent, but has updated the section of their website dealing with lead at least three times between February 5 and 10. The old page, “Lead In Your Drinking Water,” has been replaced with “Reducing Lead Levels in Drinking Water,” and the link on the homepage now reads “Lead in Household Plumbing.” Providence Water has not placed dates on their statements. The most recent one (as of February 10) says, in part, “Our water meets or exceeds all Federal and State Safe Drinking Water Act Regulations.”



Despite lead being a highly regulated and tightly monitored neurotoxin, information about one’s personal risk from lead can be surprisingly difficult to get. Some Rhode Island buildings are certified as lead safe, but most aren’t. And some 80 percent of homes are thought to be older than 1978, the year lead paint was outlawed for home use, according to the Rhode Island Department of Health. Providence Water estimates that 20,000 homes in Providence are still serviced with lead pipes that run from the mainline in the center of the street to the sidewalk, where the homeowner’s piping begins. Federal law has required that Providence Water distribute brochures via mail informing residents of excessively high lead concentrations in the city overall, but doesn’t require that the utility distribute information detailing exactly where utility-owned lead service lines are used. Consequently, a system map is not available online. Customers may call the Lead Service Hotline or the Water Quality Hotline and inquire about a specific address, but it’s easy to imagine that many Providence residents do not know that they should be doing this. And information about pipe material isn’t widespread even among utility employees. None of the maintenance employees from that night knew what metal the service lines off the main they were flushing consisted of.And even if someone does know the material of the pipes, both in their service line and in their own plumbing, testing for lead in the water that comes out of the tap is done mostly by conscientious customers that are willing and able to pick up a lead testing kit and pay a $10 processing fee. Koelsch did say, however, “I’m sure if people can’t afford the $10 they’ll give [the test] to them.”

A recent report by the Environmental Justice League of Rhode Island shows that environmental toxins are predominantly concentrated in low-income and minority neighborhoods of Providence. This finding is supported by a 2010 study in the Maternal and Child Health Journal that demonstrates that lead poisoning is concentrated in Providence, Pawtucket, Central Falls, and Woonsocket, and in poorer and less white areas within each of those cities. In some suburban census blocks they found zero cases of lead poisoning between 1993 and 2005, compared to one urban census block where 48.6 percent of children were lead poisoned in that same time period.2 But local activists from organizations such as Childhood Lead Action Project and the Environmental Justice League of Rhode Island say the problem goes beyond the presence or absence of environmental health hazards in these neighborhoods. “We don’t live in a city and a state where everyone has the same power to act on the information that they may or may not have about lead hazards and other environmental hazards in their homes,” Laura Brion, Director of Community Organizing and Advocacy at the Childhood Lead Action Project, told the Independent.



Since federal and state legislation began targeting lead in the 1970s, the incidence of lead poisoning has steadily decreased in the United States, a fact that has lead some media outlets to call news coverage of the Flint, Michigan water crisis overdone. In the mid-1970s the Centers for Disease Control and Prevention (CDC) found that the average US child under the age of 5 had a blood lead level of 15 micrograms per deciliter. In context, the on-going crisis in Flint finds 4.9 percent of the city’s children with blood lead levels greater than or equal to 5 micrograms per deciliter, the amount of lead that the CDC defines as lead poisoning.

Rhode Island is one of the country’s worst states when it comes to lead poisoning. According to a 2010 study by Rebecca Renner published in Environmental Health Perspectives, the rate of children with elevated blood lead levels in Rhode Island is three times higher than the national average. Renner attributes this, among other things, to corrosive water that strips traces of metals from the pipes, to the fifth-oldest housing stock in the nation, and to the tens of thousands of Providence homes serviced with lead service lines.

“We also have issues, just like Flint, with lead pipes being used to bring our water to our homes,” Jesus Holguin, Youth Leadership Director at the Environmental Justice League of RI, told the Independent.  “There are similarities between Providence and Flint when talking about our Industrial past and the way these industries have all closed down and moved away, leaving a legacy of pollution in our communities. The right to clean air, clean water, and safe places for kids to play is something that wealthy communities take for granted. Many low-income and minority communities don’t get parks, street lights, housing code enforcement, or safe drinking water.” Koelsch, for Providence Water’s part, says that the utility “take[s] concerns from all their customers seriously, no matter what neighborhood they live in.”

Renner believes that the Rhode Island Department of Health downplays the correlation between lead in drinking water and lead poisoning among children, arguing instead that other environmental sources of lead are the prime drivers of lead poisoning. “When we see elevated blood levels, the typical sources are either paint, dust, or soil,” Joseph Wendelken of the Rhode Island Department of Health told the Independent when asked about Renner’s position. (For the record, Laura Brion agrees that paint, dust, and soil are more often the culprits behind elevated blood levels, but worries that the current flawed testing protocol means that we don’t really know what the scope of the lead-in-water problem is.)

Despite this worry, Rhode Island is making progress in the fight against lead poisoning. Data from the Department of Health show the prevalence of lead poisoning has decreased steadily from 34 percent of children in 2002 to 5 percent in 2014. “Rhode Island is still known, nationwide, as a lead poisoning hot spot,” says Brion. “We’re known as a lead poisoning hotspot that has done a lot to make the situation better, but we’re still not ahead of the pack.” The 2014 data indicate that about 1,000 children had elevated blood lead levels that year, according to calculations made by the Independent.  And for advocates, that number is still too high.

Every case of lead poisoning is preventable. The sources of lead are well-known and the mechanisms by which it enters the blood stream are non-controversial, even if the relative proportions to be attributed to water versus soil, dust, and paint are debated. That’s a big reason why these 1,000 lead poisoned children in Rhode Island represent a scandalous failure to public health advocates despite the fact that the figure is an improvement on ten years ago. And it’s why the situation in Flint is such an outrage to so many. Part of what is missed by those who call media coverage of Flint overdone is the fact that ‘better’ simply isn’t good enough when it comes to lead.

Critics of lead abatement policies point out that the blood lead level considered to be poisoning has been lowered over time by the CDC—most recently in 2012 it was lowered from ten to five micrograms per deciliter. State Representative Joseph Trillo (R–Warwick), speaking in 2014 against a tax increase on home sales that would have provided $2.3 million for lead paint abatements said, the state’s improvement in the lead poisoning rate “wasn’t enough for the lead paint people. So what did they want to do? We had reduced it from thirteen thousand kids ten years prior down to twelve hundred. Now it was going down so low they said we have to lower the standard of the blood level. And they did that… we’re putting a tax on the property owners to put money towards a problem that’s been solved.”

But there is no known safe concentration of lead in the blood, and negative health effects have been found with as little as two micrograms per deciliter. The dangers of even low levels of lead are well established and include risk of a variety of neurological and other disorders. Inadequate funding or political will behind lead paint abatement programs, home risk assessment programs, or upgrades to water systems, will continue to allow a certain amount of lead poisoning to happen. And since the victims are predominately poor and predominately Black and Latinx, a certain political tolerance for lead poisoning seems likely to persist despite the efforts of generally well-intentioned yet underfunded health departments like Rhode Island’s. “Although Providence has made a lot of good progress around lead,” Holguin says, “we still see disparities in who’s affected in terms of race and income.”

“When I look at Flint I’m just heartbroken on so many levels because I just know how possible it was to stop the disaster from ever happening,” Brion told the Independent. “Every child that has been lead poisoned has experienced a violent attack on their brain. And I don’t think that’s a dramatic way of putting it. It deserves that attention, that horror, and that respect. Our normal should be zero. Because it can be zero and because all children deserve that.”



1 Providence Water officials disagree, and tout the practice as part of their anti-lead efforts.

2 The paper does not make it clear whether that census block is in Providence, Pawtucket, Central Falls, Woonsocket, or Newport, which are statistically clustered together as the worst lead poisoning areas.

Patients poised to lose everything under Raimondo’s medical marijuana tax


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2016-02-11 ACLU Medical Marijuana TaxRhode Islanders who use medical marijuana to help manage chronic and debilitating medical conditions spoke out today against a proposal in Governor Gina Raimondo’s 2017 budget that would levy heavy taxes on medical marijuana plants grown by patients and caregivers.

At a news conference held by the American Civil Liberties Union of Rhode Island (ACLU) and the RI Patient Advocacy Coalition, patients said this “sick tax” on medical marijuana would be devastating to them and many other patients and caregivers, making it extremely difficult, if not impossible, for them to access the medicine they need to manage their pain and other medical symptoms. The proposed tax, the groups said, has generated a palpable fear in the patient community and should be struck from the proposed budget.

“If these changes become law, I will be effectively forced out of the medical marijuana program,” said Peter Benson, an East Greenwich resident and medical marijuana patient who is paraplegic and uses medical marijuana to control painful and persistent muscle spasms. Benson broke his neck in a bicycle accident when he was 17. He is confined to a wheelchair. Benson called the governor’s tax “an absolutely cruel proposal.”

“Medical marijuana gave me my life back and my relationship with my wife and daughter,” said Benson. Marijuana controls the painful spasms and allows him to hold his daughter in his lap.

According to a fact sheet prepared by the Governor’s office, the new tax would impose a $150 per plant charge on patients lawfully growing marijuana for medical purposes, and a $350 per plant charge for caregivers volunteering their time and energy to grow plants for sick patients. The proposal also reduces the number of plants that patients can grow.

Ellen Smith, from Scituate, is both a medical marijuana patient and a caregiver for five other patients. She said of the proposed tax: “It would add more than $8,000 a year to the cost of growing medicine for my patients. They can’t afford it and neither can I. It is breaking our hearts.”

Smith remembers meeting candidate Raimondo who promised that she supported the medical marijuana law. Voting for Raimondo is a vote she regrets. Under the Governor’s proposal “gifting” the donation of excess marijuana to those who cannot afford to purchase it, will be taken away. Smith does all she can to care for the patients she provides for, and gifts all excess marijuana to the needy. Now she literally fears for her life and the lives of her patients.

“I will not only lose my patients, I will lose my purpose in life,” said Smith, who says the anxiety over this proposal has contributed to her suffering. One night, during a particularly bad breathing episode, she comforted herself that perhaps her death might be used to convince the Governor to change her mind.

The Governor’s fact sheet claims that each marijuana plant is “estimated to generate an average of $17,280 of annual revenue for a caregiver,” and that therefore the tax “amounts to just 2 percent of the value of marijuana produced.” But JoAnne Leppanen, executive director of the RI Patient Advocacy Coalition, noted that patients and caregivers are growing the plants for medical purposes only and make no money from the plants. “These plants produce medicine, not money,” said Leppanen.

Leppanen pointed to the difficulties and costs patients already face in growing marijuana, and said: “This is a draconian proposal based on fictional numbers that undermines the purpose of the medical marijuana program. It will wreak havoc on the lives and health of thousands of Rhode Islanders.”

“If one marijuana plant was worth $17,000 we’d be having this meeting in Hawaii,” said Benson.

A plant big enough to be worth $17,000 would be the size of the State House Holiday Tree, said Leppanen.

Bobby Brady-Cataldo was the second patient in Rhode Island to be legally able to used medical marijuana. All the marijuana she gets to treat her symptoms of MS is gifted. 80 percent of my money goes to my mortgage, she said, and she would not be able to afford medical marijuana otherwise.

The Governor’s proposal means, “people can’t give me medicine that literally saved my life. Is this ignorance or cruelty?” asked Brady-Cataldo. “They’ll give me Vicodin or Oxy, they’ll give me a drug habit, but they won’t help me.”

Steven Brown, executive director of the ACLU of Rhode Island, added: “Having a medical marijuana program means little if the state makes it impossible for all but the wealthy to actually participate in it. The patients and caregivers affected by this proposal grow medical marijuana to ease their symptoms and to help others; they are not running a lucrative drug trade. The state should treat them just as they would any other patient using legal medication. Imagine charging sick patients prescribed codeine a special tax based on the street value of the medication if they illegally sold it. We fervently hope the Governor will take this troubling tax proposal off the table.”

The ACLU has long supported the availability of medical marijuana for patients who could benefit from its use.

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Regulate RI responds to Raimondo’s proposed medical marijuana tax


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regulate riGovernor Gina Raimondo recently unveiled a proposal to create a “tagging” system to track medical marijuana plants in the state. Patients and caregivers who cultivate medical marijuana for patients will be required to pay $150 or $350 per plant for these tags. Polly Reynolds, a registered medical marijuana patient who cultivates marijuana to ease her muscle spasms and pain caused by multiple sclerosis, issued the following statement:

Instead of levying hefty fees from patients like me who have debilitating health conditions, Governor Raimondo and lawmakers should tax those who use marijuana for enjoyment. For us patients, marijuana is often the only thing that eases our suffering, and it is already difficult to afford because health insurance does not cover it. Raising revenue from seriously ill patients’ medicine is wrong, but taxing recreational consumers is appropriate and could help alleviate our state’s deficit.”

Jared Moffat, Director of Regulate Rhode Island, issued the following statement:

We tax alcohol, but not prescription medications. Similarly, it makes little sense to extract revenue from sick people who need marijuana as a medicine while keeping marijuana that is used for fun untaxed and in the illicit market. I suspect most recreational marijuana consumers would be happy to pay taxes if only the state would make it legal for them to do so. In addition to generating more revenue, regulating marijuana like alcohol would erode the illicit marijuana market and create new businesses and jobs all over the state. It’s time to get our head out of the sand and move forward like our neighbors in Massachusetts and Vermont.”

[From a press release]

AIDS Project RI offering free testing on Sunday


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Providence's Gilbert Augustave, AIDS Project RI employee and New England Tech student, helps to spread the word about the importance of getting educated, tested, involved and treated.
Providence’s Gilbert Augustave, AIDS Project RI employee and New England Tech student, helps to spread the word about the importance of getting educated, tested, involved and treated.
AIDS Project Rhode Island is joining with National Black Leadership on AIDS, the Centers for Disease Control, the Black AIDS Institute and other organizations in participating in National Black HIV/AIDS Awareness Day on Sunday, February 7, 2016.
The national theme is “I am my brother’s and sister’s keeper. Fight HIV/AIDS.” A supporting theme is “Get educated, get tested, get involved and get treated.”
According to the Centers for Disease Control, of all racial/ethnic groups in the United States, African Americans have the most severe burden of HIV. The Rhode Island Department of Health reports that Blacks/African Americans and Hispanics in Rhode Island experience a disproportionate burden of HIV/AIDS and other sexually transmitted diseases.
In observance of the day, AIDS Project Rhode Island is offering special hours for free, anonymous, rapid HIV testing at its 9 Pleasant Street, Providence, RI 02906 location on Sunday, February 7 from noon until 3 p.m. on a walk-in basis. No blood is drawn, and results are available in 20 minutes.
Anyone wishing to be tested is welcome.  Testing will be available in English, Spanish and Portuguese.
HIV stands for “Human Immunodeficiency Virus.” HIV can lead to AIDS, “Acquired Immunodeficiency Syndrome,” which greatly weakens the immune system increasing the opportunity for serious infections and cancers. Treatments for AIDS, and to prevent HIV from turning into AIDS, have greatly improved over the years so infected persons can often have normal lifespans with proper care.
The Centers for Disease Control recommends everyone between 13 and 64 get tested for HIV at least once.  “HIV testing should take place more often if you are engaging in risky behavior, such as sharing needles or engaging in unprotected sex,” said Stephen Hourahan, AIDS Project Rhode Island’s executive director.  The organization offers an “HIV Risk Quiz” under the “Get Tested” drop-down menu on its website www.aidsprojectri.org.
In addition to testing, information will be available about treatment to reduce the risk of HIV infection, Pre Exposure Prophylaxis (PrEP) and Post Exposure Prophylaxis (PEP). PrEP is an HIV prevention approach where HIV-negative individuals use anti-HIV medications to reduce their risk of becoming infected if they are exposed to the virus.  PEP is an HIV prevention strategy where HIV-negative individuals take HIV medications after coming into contact with HIV to reduce their risk of becoming infected.
AIDS Project Rhode Island regularly offers free, anonymous, rapid HIV, and Hepatitis C, walk-in testing Tuesdays 4 to 6 p.m. and Thursdays from 5 to 6:30 p.m.  Appointments are also available and can be made by calling 401-831-5522 ext. 3824 or emailing takecharge@aidsprojectri.org.
AIDS Project Rhode Island will be providing free, anonymous, rapid testing in the United Way 2-1-1 Outreach RV at South Providence Neighborhood Ministries, 747 Broad Street, Providence from 9 a.m. to noon on Tuesday, January 19; Camp Street Ministries, 190 Camp Street, Providence from 9 a.m. to noon on Thursday, January 21; McAuley House, 622 Elmwood Avenue, Providence from 9 to 11 a.m. on Friday, January 22; and at the Church of St. John the Baptist, 69 Quincy Street, Pawtucket on Monday, January 25 from 10 a.m. to noon.
Also, on Tuesday, January 26 at Olneyville Food Center, 261 Manton Avenue, Providence from 9 a.m. to noon; Wednesday January 27 from 9 a.m. to noon at St. Edward Food and Wellness Center, 1001 Branch Avenue, Providence; and Emmanuel House, 239 Public Street, Providence, on Thursday, January 28 from 9 to 10 a.m.
Visit www.aidsprojectri.org for an updated schedule for testing on the United Way 2-1-1 Outreach RV.
AIDS Project Rhode Island is a division of Family Service of Rhode Island.
[From a press release]

Powerful video about National Grid’s disregard for customer health


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A heartbreaking video, The Lifeline Campaign, about National Grid’s seeming disregard for the law, has just been released on Vimeo. National Grid is being sued by the RI Center for Justice because they routinely shut off the electricity of seriously ill and disabled customers with past due bills, despite the presence of a doctor’s note that says the patient’s life will be imperiled if they lose service. This is against Rhode Island law.

Worse, the RI Public Utilities Commission, charged with protecting consumers, routinely rubber stamps National Grid’s requests to terminate service and does not review each case on the merits.

There is one particularly chilling sequence in which Ramon, who has a machine that allows him to breathe, tells us about the reaction of the National Grid employee when he was confronted with the fact that Ramon might die without electricity.

“It’s my job, and National Grid ordered me to shut it off,” said the National Grid employee, “so, it’s my job to do it. I hate to do it. See, I wouldn’t like to do it because I know your life depends on it, but it’s my job and I have to do it.”

You don’t have to read Hannah Arendt to understand what’s happening here.

You can watch The Lifeline Project in its entirety, below:

I’ve covered this story here:

The Lifeline Campaign is a documentary film produced by Brown University undergraduates Arohi Kapoor, Drew Williams, Isabelle DeBre, and Victoria Kidd, with the support and involvement of the George Wiley Center. The George Wiley Center is a grassroots community organization that fights for utility justice and other forms of social and economic justice through community organizing to win concrete changes in public policy. Learn more at: georgewileycenter.org.

The Rhode Island Center for Justice is a non-profit public interest law office that collaborates with the George Wiley Center to operate the Lifeline Project, a program designed to enforce and protect the rights of seriously ill and disabled low-income utility consumers in the State of Rhode Island. Learn more about the work of the Rhode Island Center for Justice at: centerforjustice.org.

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#NoNewRoads: How Bernie Sanders Should Preempt Michael Bloomberg


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New YorkRumors have been floating that former Mayor of New York City, Michael Bloomberg, might run for president. Bloomberg has presented his potential run as a middle-ground between rightwing candidates like Donald Trump and progressive leaders like Bernie Sanders. Whatever critiques there might be of Bloomberg, the fact is that he’s led on some issues. Bernie Sanders should work hard to undermine Bloomberg’s base of support on a key issue where the Bloomberg administration led: transportation.

Michael Bloomberg was a big proponent of stop-and-frisk policies, which should be a concern for any progressive voter. Stop-and-frisk did recover caches of weapons, perhaps preventing some crimes, but only by harassing large numbers of people of color with an indiscriminate dragnet. The vast majority of people stopped-and-frisked were found to have committed no crime whatsoever, and federal courts found that the policy systematically violated the rights of people of color. Bloomberg’s candidacy would certainly be considerably better than any of the Republican candidates, but in an election year when voters have the ability to choose a candidate like Bernie Sanders, it shouldn’t be hard for progressives to make the choice: Sanders has led on issues of mass-imprisonment, ending the drug war, and restoring respect for people of color in a way that few American candidates, and no mainstream American candidate, ever has. Alongside Bloomberg’s iffy positions on civil rights stand some genuine achievements in transportation and land use. Bloomberg’s New York became a leader on environmental issues related to transportation, and the Sanders’ campaign needs to sharpen its messaging on this subject in order to undermine that leg of support.

A signature advantage for Bloomberg is that his administration smartly approached transportation policy to augment environmental and social benefits for New Yorkers. This Streetfilms video shows the almost magical transformation of many New York intersections under the tutelage of Janette Sadik-Kahn and Mayor Michael Bloomberg. Even for someone like me who “Feels the Bern”, and who doesn’t fully trust Michael Bloomberg on a range of other issues, it’s hard to not be impressed:

Sanders’ campaign has called for infrastructure investment as a major plank of his get-people-back-to-work message. I have disagreements with Sanders’ approach. I think that transportation funding should come from user fees. None of the candidates–Sanders included–has taken this position. But even as Sanders approaches the funding mechanisms differently than most urbanist voters would like, he can still draw from his past experience and speak to the need to economize on what the country spends on out of that funding.

The United States spends more money on expansion of its road system than on maintenance, and despite some hopeful examples to the contrary, has often maintained design mistakes like urban highways into their second lifecycle, often at the behest of corporate giants like Microsoft and against the wishes of local voters and small businesses. Sanders, who was a four-term mayor of a leading urbanist place, Burlington Vermont, doesn’t need to stretch himself into any pretzels to speak eloquently to why this is a mistake. But at present, Sanders is not doing enough through his campaign to explain how America’s infrastructure crisis is one of overspending. His campaign needs to say clearly: #NoNewRoads.

As a mayor, Bernie Sanders ‘out-Republicaned Republicans‘. He did so by introducing radical concepts like competitive bidding, by successfully lowering property taxes, and by successfully guiding the city towards new development while also protecting the rights of poor people in public housing. Sanders inspires people like me not just with his social-democratic approach to some issues, but his genuine understanding of when free markets work well. Transportation is an opportunity for Sanders to bring that cost-saving approach into focus.

Sanders wants a new single-payer healthcare system, but has also spoken eloquently to the fact that Americans spend more on healthcare than any other industrialized nation. Just as we waste money on healthcare procedures that bring poor results, we also are wasting precious resources on transportation boondoggles that do not add up to longterm economic growth. It’s time for the Sanders campaign to speak more forthrightly on this. In the second Democratic debate, Sanders again stuck to this spending issue:

…[W]hy do we remain the only major country on earth that does not guarantee health care to all people as a right? Why do we continue to get ripped off by the drug companies who can charge us any prices they want? Why is it that we are spending per capita far, far more than Canada, which is 100 miles away from my door, that guarantees health care to all people?

It will not happen tomorrow. But when millions of people stand up and are prepared to take on the insurance companies and the drug companies, it will happen, and I will lead that effort.

Medicare for all, single-payer system is the way we should go.

On imprisonment, the focus on fiscal conservatism has been mixed into Sanders boldly progressive message. From the second Democratic debate:

We’re spending $80 billion locking people up disproportionately, Latino and African American. We need very clearly major, major reform in a broken criminal justice system from top to bottom. And that means when police officers out in a community do illegal activity, kill people who are unarmed, who should not be killed, they must be held accountable. It means that we end minimum sentencing for those people (UNINTEL). And it means that we take marijuana out of the federal law as a crime and give space for freedom to go forward with legalizing marijuana.

Sanders has even brought his hawk-eyed approach to spending to military waste. From the second debate, again:

This nation is the most powerful military in the world. We’re spending over $600 billion a year on the military. And yet significantly less than 10% of that money is used to be fighting international terrorism.

We are spending hundreds of billions of dollars (UNINTEL), 5,000 nuclear weapons. I think we need major reform in the military making it more cost effective but also focusing on the real crisis that faces us. The Cold War is over and our focus has got to be on intelligence, increased manpower, fighting international terrorism.

A “no new roads” approach, sometimes called a “fix-it first” approach, would also be surprisingly within the mainstream. In a recent interview, Urban Cincy blog author Randy Simes points out that even fairly conservative and car-oriented DOTs like Ohio’s ODOT are looking to “fix it first” for financial reasons. Part of what worries transportation advocates about Bernie Sanders’ messaging on transportation funding is that this fix-it-first way of doing things might evaporate at the state level if more money became available. Sanders should make it clear to the transportation community that his focus on transportation funding does not mean a return to business-as-usual for road expansions, and that DOTs still need to start prioritizing and limiting their spending to bring the U.S. back on track.

Talking about the true roots of America’s transportation crisis–overspending on bad projects–should hone close to an attitude about public finance that Bernie Sanders has already embraced his entire life. It will clearly energize existing, young, liberal voters, while also reaching out to moderates who are concerned about costs. It takes away the false choice of progressive vs. practical, and puts them in one candidate together. Supporting the #NoNewRoads campaign will also bring Sanders close to a group of people the Clinton campaign has been attempting to separate him from: Obama lovers. Sanders has supported many of the positive achievements of the Obama era while also criticizing the president from the left, but on this issue he would be in line with our current president: President Obama invited Strong Towns, the organization that coined #NoNewRoads, to the White House to speak on rural development issues. Sanders can demonstrate that he’s able to work with fiscal conservatives, champion climate change action, and shore up support from supporters of President Obama, all at once. Win-win-win.

Donald Trump may think that we can slap a billion dollars on anything and make it better, but Bernie Sanders has shown on a range of issues that he’s much smarter. Sanders is a “man of the people” says one article: he walks to work and takes the middle seat on planes. The Sanders campaign should speak smartly on transportation so as to draw on the approach he’s taken in the past. Let’s #FeelTheBern for #NoNewRoads.

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Minority and low-income communities are targeted for hazardous waste sites, research confirms


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EJLRI01Decades of research show a clear pattern of racial and socioeconomic discrimination when it comes to siting facilities for hazardous waste disposal, polluting industrial plants and other land uses that are disproportionately located in minority and low-income communities.

But what’s been less clear is whether the placement of these facilities was deliberate on the part of the facilities’ owners and public policymakers, or if the noxious facilities came first, leading to disproportionately higher concentrations of low-income residents and minorities moving into the surrounding community.

In order to test both theories, Paul Mohai of the University of Michigan and Robin Saha of the University of Montana analyzed 30 years of demographic data about the placement of 319 commercial hazardous waste treatment, storage and disposal facilities.

By looking at the demographic composition of neighborhoods at the time each hazardous waste facility was built and comparing that with the demographic changes that occurred after the facility began operation, they determined that existing minority and low-income communities were, without doubt, targeted.

The full results of Mohai and Saha’s studies were summarized in a pair of papers published by the journal Environmental Research Letters late last year, one in November, the other in December.

“We conclude that racial discrimination and sociopolitical explanations (i.e., the proposition that siting decisions follow the ‘path of least resistance’) best explain present-day inequities,” they wrote in the November paper.

The researchers say that NIMBYism (“Not In My Backyard”) in more affluent, white communities causes industry to target communities with fewer resources and political clout.

Some demographic changes did occur near hazardous waste facilities after they were built, but Mohai and Saha say they were surprised to find that these changes were mostly a continuation of pre-existing population trends.

That is, the two researchers found that hazardous waste sites were frequently built in transitional neighborhoods, where wealthier, white residents had already begun moving out and poor, minority residents had already been moving in for a decade or more prior to the facility’s construction.

Being in states of transition only further erodes the resources and political clout of the impacted communities, according to Mohai and Saha, making them, so to speak, easy targets.

“Areas with large numbers of people of color with limited resources and political clout have limited ability to fend off new unwanted facility siting,” they wrote.

“Furthermore, areas undergoing demographic changes are also areas vulnerable to declining social capital, resources, and political clout, as demographic change may represent the weakening of social ties, the loss of community leaders, and weakening of civic organizations.”

These studies could finally lay to rest the idea that the siting of polluting industrial facilities in low-income and minority communities is somehow anything but the result of structural discrimination.

“Contrary to earlier beliefs about post-siting demographic change, neighborhood transition may serve to attract noxious facilities, rather than the facilities themselves attracting people of color and low-income populations,” Mohai said in a statement.

[Reprinted from DeSmog Blog with permission]


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